Rare Disease Day: Why it matters and how to get involved
Rare Disease Day 2025 aims to uplift the rare disease community and promote greater awareness.
Rare Disease Day 2025 aims to uplift the rare disease community and promote greater awareness.
In honor of Rare Disease Day, here are 10 new treatments approved by the FDA to treat rare diseases over the past year.
Sleep apnea with ATTR-CM can significantly affect quality of life in a variety of ways as interrupted sleep is not restful or restorative.
Eating a balanced and nutritious diet is good advice for most people, but it is particularly important for people living with ATTR-CM.
Early diagnosis, adherence to treatment and a healthy lifestyle can help ease the burden of ATTR-CM-related gastrointestinal issues.
Adopting a structured approach to physical therapy will strengthen muscles and improve flexibility with ATTR-CM.
A key aspect of living with ATTR-CM is to proactively preserve your quality of life through medication, diet, exercise and lifestyle changes.
A combination of medication and lifestyle adjustments offers a practical approach to getting a good night’s sleep when dealing with ATTR-CM.
The progression of ATTR-CM is closely related to the accumulation of amyloid fibrils in the heart, nerves and other organs.
ATTR-CM is most often associated with cardiac symptoms but can also include nerve pain and other neurological symptoms.