Waiting for test results that may confirm a diagnosis of transthyretin amyloid cardiomyopathy (ATTR-CM) can be nerve-wracking. Although it’s easier said than done, you need to take care of your mental well-being during this stressful time.
Thankfully, there’s many ways to keep from ruminating. Here are some steps you can take to help reduce anxiety while waiting for test results.
Engage in hobbies
Finding ways to keep your mind occupied can help distract you from thinking about your test results. If you are experiencing symptoms consistent with ATTR-CM, though, it might be difficult to engage in the activities you once enjoyed.
Read more about ATTR-CM testing and diagnosis
Reading, journaling, meditation, crafting, puzzles and low-impact exercise are just a few ways to stay busy. You might need to try several options before you find a new hobby that helps you relax.
Seek out support
When waiting on a potential diagnosis of a chronic disease such as ATTR-CM, reaching out to your support system can bring a much-needed sense of comfort. Consider talking to friends, family or a therapist about the emotions you’re feeling and the worries on your mind.
You may also browse some of the support groups that exist for patients with ATTR-CM for advice. Even if you do not end up receiving an ATTR-CM diagnosis, connecting with individuals experiencing similar systems can be reassuring.
Maintain routine
If you are someone who prefers not to dwell on upcoming test results, maintaining a consistent daily routine can be a very useful strategy.
Try to wake up and fall asleep at the same times you normally do, and engage in your typical activities and hobbies. If you usual routine includes a morning cup of coffee or a glass of wine with dinner, though, you may want to pause these habits, since caffeine and alcohol can both contribute to anxiety.
Ask when you should expect results
For some, finding out when and how you will receive your results can alleviate some uncertainty. Knowing this information can also help you prepare for the appointment.
Although your doctor might not know exactly when test results will become available, they may be able to provide a rough time frame. They can also let you know if the findings will be discussed via telehealth or during an in-person visit.
Some people may also plan ahead by compiling a list of questions for their doctor, or by asking a loved one to accompany them to the results appointment.
What to do if you see results in your patient portal
In some cases, you may receive your test results in your patient portal before having a chance to discuss them with your doctor. While it can be tempting to read through the results on your own, there’s reasons why you might want to wait.
Testing reports may include complicated scientific jargon that appears alarming at first glance. You might walk away with more fear and confusion than answers. That’s why it’s often recommended to wait until you can speak with a physician, who will clearly explain your results and the next steps.
Consider your own needs
With any of these strategies, it is important to ask yourself whether they might benefit you. While some individuals may find it comforting to plan ahead, others may feel more anxious by doing so. Don’t be afraid to try out multiple approaches to see what works best for you.
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