Rare disease advocate Dan Lier inspires others with his ‘Rare Disease Playbook’
Rare disease advocate Dan Lier, who has amyloidosis, discusses his work helping those with rare diseases discover new mindsets.
Larry Luxner
Miami native Larry Luxner, a veteran journalist and photographer, has reported from more than 100 countries in Latin America, Africa, Eastern Europe, the Middle East and Asia for a variety of news outlets. He lived for many years in San Juan, Puerto Rico, and the Washington, D.C., area before relocating to Israel in January 2017. Larry spent four years with BioNews Services writing news and features about the rare disease community from his base in Tel Aviv. He has continued his work covering rare diseases since joining Rare Disease Advisor in 2021.
